Life is fragile.

IMG_3013I don’t know how to say it other than life is so fragile.  And while I’m at it, life is also cruel and unfair.

I spend my days thinking about ways to get healthier, ways to prevent the cancer from coming back, my crooked smile, my mortality, etc. etc. etc.  All pretty ridiculous things to occupy my time on this earth.

But the awful reality is that tragic accidents happen.  I learned absolutely horrible, gut-wrenching news of a dear family friend whose life was taken yesterday.  And I just can’t believe it.  I have been nauseous all day.  And I can only question how they are managing to get through each waking minute.

I haven’t posted in ages, probably because I haven’t had much enlightening news to share. But today I have a simple message for my friends:

Hug your loved ones.

Kiss your loved ones.

Bury the hatchet on unproductive grudges that paralyze true happiness.

Be grateful for each and every day that you have in this life, and say it.  Or think it.  Or scream it at the top of your lungs.

Tell the people you love that you love them.  Even if you feel like a broken record.

And if you aren’t getting the love you deserve, get out and find it. (take care of business first, though)

Life is too short.  Too fragile.  And too precious to waste on people (and things) who do not make life more meaningful.

Thank you for hearing my emotional rant.

Sending love and prayers and healing energy to a family who has already had enough challenges for one lifetime.

Kristin

 

 

 

 

1 CT, 2 MRIs, 8 doctors, 24 hours and a heaping cup of gratitude

As any cancer survivor can attest, the dreaded quarterly follow-up scans can be the most nerve-wrecking, Xanax-inducing time of your life.  Then throw into our mix, a plane ride to Boston on an airline that will remain nameless. (but if I told you bad customer service and delayed plans I bet you could guess.)

Wyatt and I made the trek for a quick overnight stay in Boston, with appointments starting Monday at 1PM and ending Tuesday at 1PM. I can hardly believe we had eight doctor appointments and 3 imaging studies.  I actually DO feel like Wonder Woman! (thank you Leslie Needleman for sharing that power)

The big stress on the front end of our trip, which I chose to keep relatively quiet, was that a biospy had been ordered by my Austin ENT because he found suspicious ‘granulation’ in my ear canal, near the most recent tumor site.  So the CT had been scheduled for my surgeon and I was prepared to have the biopsy Monday afternoon.

But low and behold, let the good news begin!  My surgeon reviewed my CT scan, did a thorough exam, and said there was nothing to biopsy. Lucky me… I will always avoid those when possible!  And I could never be upset with Dr Fyfe, my Austin doc, for being overprotective.  He is watching out for me, for sure.

And then it got better.  I visited my plastic surgeon, the awesome Tessa Hadlock, and she couldn’t believe her eyes.  She actually saw some movement in my smile!  And frankly, I had quit looking for it.  At my last appointment with her in April, just before we left town, she suggested my gracillus muscle had been fried by the proton treatments. I had pretty much resolved myself to losing my smile forever.  But it didn’t matter as much as it used to, because I was alive after two battles with cancer and living life had become way more important.  I had a beautiful son to live for, and the best husband on the planet earth.  And family and friends who are so wonderful, who surround me with love and laughter every single day.

This is where the heaping cup of gratitude comes in.  I just can’t express how lucky I feel.  Sad at times, to have been dealt this hand.  But fortunate on the other hand to have this opportunity to live life with such meaning and clarity.  I remember that daily, and I say it to myself…thank you for the gift of this day, and thank you for the people I love, and who love me back.  This gratitude thing…it has become my favorite ingredient in life.

And to my final (and best) news of the day: we spoke with my surgeon late Tuesday.  He shared my MRI report from the radiologist- and that my scans are unchanged from three months ago. Even some decrease in the ‘uptake’, which in cancer terms means I’m washing that cancer right outta my hair. He was thrilled no doubt, but not near as thrilled as we are.

My sweet love Wyatt, we made it through another scary week.  Yes, we did. 🙂

This post is dedicated to one of the most amazing men I will have ever had the pleasure to know, Mr. Guy Ready.  I know you are with us in spirit and I will always see you smiling from up above.

“And when there was no crawdads to be found, we ate sand.”

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chandon

You ate what?

We ate sand.

Thank you Raising Arizona, one of the funniest movies of all time for this reference. Now can you fill in the blank when you see the picture I posted for this blog.

“And when there was no champagne to be found, we drank Chandon.”

And for you smarty-pants out there (you know who you are) this is EXCELLENT news on the Heaton-Peabody front!

After a whirlwind day of appointments in Boston, the one that counted– my follow-up with the amazing Dr. Lin and a review of my MRI report from yesterday– the news is in: “It looks great!”  And then he said the word “great” two or three more times.

Yay, me!!

The report had some scary stuff in it as expected, things to watch and all of that stuff we knew would be included, but overall he was super-duper pleased.  He credited himself a couple of times for being such an awesome surgeon, and that’s why the MRI looked so good.

We concur, Dr. Lin.  You are awesome. : )

The final radiology report will be out next week, with a group review during the tumor board, so we expect to hear from him then to re-confirm that I am clean….but for now, we are feeling pretty squeaky.

Please allow me to end on this note, so I can finish this glass of bubbly with my amazing husband.  (who no longer needs a Xanax but will soon be getting a quality airport massage)

Love, K

Big day in Boston: follow-up #1

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boston common in summer

Good morning from Boston! It sure looks a lot different here than it did when we left. (disclaimer: I did not take this picture!) All I can say is that time flies and seasons change when you’re healing. 🙂

It was a late arrival last night, partially due to the 2-hour delay on American that seems to be the norm rather than the exception these days.  But, we’re here and that’s all that matters.

We have a super-hectic schedule with my MRI this afternoon and doctor appointments all day tomorrow.  We are feeling VERY good about things and praying for excellent news.

I will admit, the first follow-up is always a little scary.  But for me and my experience, the second, third and fourth are more cause to get the blood pressure rising.

Based on my limited understanding of these things, the first scan is most likely to show what appears to be cancer.  It could be inflammation, which I know I have because the outside of my ear is still not 100% healed.  It could also show scar tissue, and I certainly have a lot of that in the region, with so many surgeries I’ve lost count.

So what I find myself asking is whether a three-month scan is even really necessary, and why do they do it in the first place?  I guess that (and maybe there’s a doctor out there who can confirm or deny) it’s to look for larger, scary things that were not there before; those that wouldn’t be surgically related.

Either way, we are not expecting to hear “you’re clean, looks perfect!”.  We are hoping for a simple “it looks just like it should, and we will continue to watch it.”

So I lovingly ask for your prayers and love and light and all of the good things that can be teleported our way for a successful follow-up visit in Boston. Just believe, along with me, that there’s nothing big, new and scary inside my head this time. That’s all. 🙂

I will report back with news on Friday and then we’ll have that well-earned glass of champagne.

Love K

Memorial Day

It’s hard to believe we’ve been home for more than a month and I haven’t had anything to say.  I’ll chalk it up to a bad case of writer’s block coupled with sheer exhaustion after three long months in Boston.

So I’ll quickly bring you up to speed.  I’m feeling pretty good. 🙂 Tired but good. My wound is almost entirely healed and I’ve been doing physical therapy twice a week to help with the pain in my neck and arm.  It’s been so great to sleep in our own bed, see family and friends, and reacquaint ourselves with the growing swarm of mosquitos who are breeding in the constant rainfall we’ve had in Austin over the past few weeks.

I wrote this post two nights ago…on our connecting flight from DFW to Austin, after a quick trip to Laguna to deal with a home repair.  I had this experience and I needed to share.  (a quick side note…our flight took ninety minutes instead of the typical thirty-five, and it was very turbulent flying over the tornado warnings underneath our wings. So I am blaming any melodrama on that moment in time!)

We got a complimentary upgrade to first on American that night (a nice surprise) and as they were closing the doors to the plane, they invited a soldier from the U.S. Army 1st Cavalry to move to a seat across the aisle from us.  And I thought to myself, that was a nice gesture.

I couldn’t help but watch him, this young kid in his gear, the stress that he wore on his sleeve, and the way he yawned as were taking off.  His eyes told the story, the story you couldn’t stomach if you actually heard it.  I was fixated on how he was doing.

Much like my friends and family who were fixated on my cancer treatment and my recovery. I was constantly surrounded by that love and deep concern.

And then I remembered it was Memorial Day weekend. I thought about the NPR broadcast we heard in the car on the way to the airport.  It seems all we hear about lately are the challenges we face as a country…as a world.  With ISIS taking over countries and extreme militants pledging allegiance to a leadership that commits horrible crimes against humanity.  

It took me back to a moment; or to many moments, actually. To the last six months spent fighting for my life. Doing everything in my power to cleanse my body of an evil militant that wanted to take me down.

And for what?  I didn’t sign up for that.  I never asked for cancer to invade my body.

Yet, these men and women who serve in our military sign up for a fight.  They are knowingly signing up for a service that will most likely result in a moment–or a year, or a lifetime–spent fighting to protect the lives of people they will never meet.  They know they are putting their lives at risk–and could very well die serving their country. And most of the people they protect they will never meet–except for a quick glance and a humble ‘thank you’ on an airplane.  It seems so disconnected.

And back to Memorial Day…what has it become in this country?  Another opportunity for Sears to have an appliance sale and every car dealer in town to get rid of the avocado green cars they thought would sell?  It’s truly pathetic.

We need to remember that it’s a time to honor those who died serving our country. While protecting our rights as Americans.  For free speech and religion and every other right.  But we as Americans need to start protecting our own rights and quit relying on our military to do the heavy lifting.  It’s time to be conservative and reduce our footprint on this earth.  To use what we need.  To get solar panels and donate the SUV to a charity and purchase an electric car.  To turn off the water while brushing our teeth. To xeriscape our yards. To buy and eat only organic and non-GMO and show the food manufacturing companies that we want the real thing, not processed hot pockets. To downsize, not supersize. 

To end our dependence on foreign oil.  Scratch that.  All oil.

And can we please find a way to do this that won’t result in earthquakes in Texas? A place that has never had freaking earthquakes?!  (Yes, natural gas–the fracking industry–I’m talking about you….wolf in sheep’s clothing, with nothing more than a brilliant “clean air” marketing campaign)

It feels like the general population is on auto-pilot and has become so far removed from the big picture that is our existence on this beautiful planet earth.

When will we wake up as a country?

How can we say thank you to our servicemen and women?  How can we do a better job of caring for our veterans and for the families who lose someone to the ultimate sacrifice?

How can each of us lessen our impact on the planet?  And save a little piece of this precious green earth for our kids, and hopefully their kids too?

It’s a sketchy parallel I’m drawing between Memorial Day and the love of our planet and my personal fight against cancer.  But it’s my blog and I can write whatever I want.

Thank you 1st Amendment.

And while I’m here, thank you Dad for serving our country, and to the brave man you were named after, my great uncle Kencil, a pilot who fought and died in WWII.  And on that note, thank you mom, who cared for this newborn (me) when my father left home to defend our country. And to all of the others who protect our country whom I will never meet.  Thank you for putting your life at risk.

Today, I’m happy to be alive and sad for those who have lost their lives fighting for this country.  Let’s give thanks to these people by making an effort–any effort that resonates within us–to protect our planet.  We can all do our part.

Happy Memorial Day.

Single digits, piglets for sale!

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It’s a mixed bag of emotions here this week.  Today was the countdown into single digit territory, which pleases me to no end. 🙂  After today, I have a mere 8 radiation treatments to go and one final chemo session next week.  That deserves a woo-hoo!

I also had a reprieve from chemo today, which was an unexpected yet very welcome turn of events.  I had hoped they would give me next week off so I could celebrate my 45th (gulp!) without the wet paper towel syndrome, but the doc said I might enjoy my birthday more if I took this week off.  Why, you ask?

Well, these apoptosis-inducing radiation blasts to my head have finally eaten through my skin and we have some bleeding and weeping to take care of.  And apparently the weekly chemo “turns up the volume” on radiation symptoms.  Add to that proton therapy, which is more damaging to the skin than traditional radiation, and you have a grapefruit-sized strawberry on the side of my head that is going nowhere for a month or so.  Bottom line, no chemo this week so yippee for me!

Overall, my spirits are up, but the lethargy from radiation is making me one sleepy girl.  These days I just hang out in bed and get waited on.  I am starting to feel super lazy and I need to thank Mom and Wyatt publicly for putting up with me on a daily basis. (Thank you! It’s almost over!)  I’m feeling pretty good about myself just walking the .6 mile journey to the hospital and back each day.

I am going to get through this crazy chapter in my life, and I just need to remember that we’re on a plane headed to Austin, TX in only twelve days.  Some days are better than others, and as long as I continue the daily affirmations that I am healed, I will get better.  I’m just waiting for the rest of my body to catch up.

On a lighter note, I got this text yesterday.  I just can’t delete it because I love it so much.  Apparently I’m now in the piglet business.  Just don’t get me started on the inappropriate use of apostrophes, or we’ll be here all day.   XO K

piglets

Natural Killer Cells, reporting for duty

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natural killer cells

It’s another big day in Boston.  And I’m here to report the feelings of ‘Blah’ finally waned over the weekend, passing the baton to a head cold and a couple more days in bed. I’m feeling much better today, just in time for the blahs to kick in tomorrow.  I would like to think I can will myself out of feeling bad and just get through it with positive thinking, but after five consecutive weeks of chemo under my belt I think I know what to expect.  No Jedi-warrior-mind-tricks will work for the chemo cocktail hangover.

On a positive note, because I don’t want to lose all of my readers after the first paragraph, 🙂 today is my highly anticipated 2/3 mark!  I’ve now completed 24 of 37 proton treatments and 4 of my 7 weeks of chemo…unless I’m lucky enough to get away with 6. Jury’s still out on that one, but I’m holding out for a reprieve.

On another VERY EXCITING note, I had a call with my nutritionist yesterday to review the body chemistry blood panels we’ve been taking every few weeks in addition to the regular panels my doctors draw.  I’m only low (or high) in a couple of areas but it’s to be expected when you’re undergoing both chemo and radiation at the same time.  Lots of inflammation, proteins getting zapped by tissue in need, and vitamin D sinking. (Hello Boston’s Mother Nature, can we get some sunshine already?)

But she was thrilled about my Lymphocytes in the white blood count number. Lymphocytes are the ‘Natural Killer Cells’ that eradicate bad cells, i.e. cancer. When your body is functioning the way it should, your lymphocytes are taking care of all the foreign enemies that need to leave the body.  And it is expected that they will take a plunge during treatment, but mine are actually on the elevated side for someone at the tail end of treatment. So that means my NKCs are reporting for duty, not allowing cancer cells to proliferate in my body.  Yay, my own body doing some heavy lifting!

She also noted that my thyroid levels are nice and low, which is highly unusual for cancer patients.  High thyroid levels are related to stress, and that means my stress levels are taking a La Casa Que Canta-style vacation.  This has been a consistently low number for me throughout treatment, and I can chalk that up to daily yoga (I’ve only missed three days in six weeks), meditation, prayer, and lots of hugs and kisses from the family and visiting friends.

I’ll toast to that. 🙂

On a somewhat related note, last night we watched the second of three episodes of Ken Burn’s six-hour documentary “Cancer: The Emperor of all Maladies.”  Wow, is all I can say. The first episode was a complete downer.  The second started to show signs of hope. I’m holding out for the silver lining in the finale tonight.

There are times I watch these documentaries and realize that this disease is a lot scarier than I give it credit.  When you’re in it, you just muster all the strength you’ve got and make a plan as to how you choose to handle it. But when you watch other people going through it, I feel profound empathy, witnessing this potentially defeating human experience in others. Especially watching the children going through it.  That is heartbreaking with a capital H.  I see these young kids and their parents every day in proton therapy and it just makes my heart ache.

What I realized yesterday is that even though I’m 44 years old, I am my parents’ child (duh), and it brought some clarity as to how hard it must be for them to go through this. I’m so lucky to have the love and support I do.  They’ve been with me every step of the way, showing up in every way.

For all the others I see in the halls of the cancer center, all I can do is send love and light and healing prayers, and hope they get the same opportunity I’ve been given to embrace life and enjoy this beautiful spiritual journey.

Thank you for listening.

Love, K

Blah.

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I vowed to be authentic in writing this blog.  And I realize I’ve shared a lot….the good, the bad, the inner-workings of my mind.  But probably not enough of the realities of day-to-day treatment.

As I limp through week four of my seven-week journey, I feel it is time to shed a little poetic justice.

BLAH

No appetite

150 grams of protein, you’ve got to be kidding

Not another whey shake, please

Fried mouth

Hard to swallow

Throat getting smaller

Body aches from head to toe

Nausea taking over my body

Can’t sleep, thank you Decadron

Right ear hearing gone

High pitched ringing

All over body rash

Hair falling out

Radiation burns on my face

Not enough aloe to soak them up

Wet paper towel

Three more weeks of this.

Blah.

This was going to be a haiku but I had too many syllables.

Tuesday = HUMP DAY!

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It’s been weeks in the making, and it’s finally here!  And just like Forty is the new Twenty, Tuesday is the new Hump Day!

With 18 radiation treatments and 3 chemo infusions under my belt, today marks the 19th of 37 total proton therapy treatments and only 3 more chemo days to go.  Well, that’s if I get my way. (more to come on that)

Today we met with my one-and-done medical oncologist, Dr. Clark [aka Griswald, as I affectionately call him.] He has that (in the best way possible) quirky-cute-goofy-stories thing going for him. We always look forward to our check-ins with Dr. Clark.

He said I looked “great” and that it was “shocking” that my mouth and skin were holding up as well as they are, considering I’ve now had a total of 68 lifetime radiation treatments to the head and neck.  He said that I am a very good patient. Yay, me!

I let him in on a little secret: that I have daily conversations with my follicles, nerves, skin and arteries, reminding them that they are resilient, safe and normal.  When I first met him I’m pretty sure he would have laughed out loud when I said that, but I think he’s starting to get my drift, if you know what I mean.  Perhaps there is something to this mind-over-matter thing I keep talking about.

He stood up to walk us to the door with a big smile, as if I just made his day a little easier, with one less patient to worry about tonight when his head hits the pillow.  Or, at least that’s what I like to think. 🙂

But it wouldn’t be like me not to negotiate a good deal when the iron is hot, so I had to ask.  “Do I really need to do the 7th chemo treatment in the last week?  It’s the day before my birthday, and that won’t be any fun.”

And his super-awesome response?  If I make it through all of the other treatments without having to skip any, it’s a good possibility.  They often pad with an extra day, just in case someone has a lapse in treatment.

And anyone who knows me knows I love a good challenge.  Only two more chemo treatments on the line?  Game on!

 

Lucky me…first third down!

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4-leaf-clover

Lucky should be my middle name. And I’m sure you’re now wondering if I’ve officially lost my mind.

The last six years haven’t appeared so lucky to an outsider looking in, with two rounds of cancer – one while pregnant – the agonizing health decline and passing of Criz, my talented and larger than life mother-in-law, three house moves, three house floods (and repairs), two home remodels, and all of the stresses that go with it. And these are the bad stressors. Imagine all of the good stress piled on top; raising a spirited and gifted child, opening and running three spa locations, and just all of the other ‘fun stuff’ that comes with life.

But lucky is just how I’ve been feeling of late. I can’t imagine a more beautiful life, amazing family and group of friends.

Today as I was receiving my fourteenth proton treatment, an enormous wave of gratitude washed over my body and tears of joy streamed down my face. It was part euphoria and maybe a little bit of nostalgia from the awesome yacht rock station on Pandora, complete with memories of island-hopping on a sixty-five-foot catamaran in Martinique, drinking the best rhum on the planet, and hanging out with great friends. (Steve Livigni and Ben Jones, I owe you for that!)

My luck today also came in the form of a few super-awesome milestones. My dad just pointed out that I’m a third of the way through treatment, I just had my third of seven weekly chemo treatments today, and tomorrow marks 30 very short days until we return home. Yay, sleeping in our own bed!

Oh yes! It’s also St. Patty’s day and that means everyone is wearing my favorite color, green, and drinking green beer. Not me, but maybe next year. : )

So in honor of these exciting milestones, I created a little list of some simple life observations I have made in the last few months on this journey.

Without further ado:

  • We as people are divine. Each of us is the embodiment of God. Some just don’t know it yet. They will in time.
  • Forgive and try hard to forget, no matter how painful. Forgiveness is the greatest liberator. But do remove toxicity from your life, it will reduce stress and add years to your bottom line.
  • Thank God (whichever God you want to thank – or the stars, or that 100-year old piece of driftwood) every day for that which you are grateful. The abundant feeling of joy you receive (and get back) from feeling grateful is impossible to convey in words.
  • When times are tough, ask for help. If you don’t have the good fortune of an amazing family like I do, reach out to your friends who love you. They are honored to help. Asking for help is not a sign of weakness, it’s a sign of good old-fashioned common sense.
  • Stress is the bane of our existence. Do whatever you can to reduce it and set it free. Daily yoga and meditation are the best ways I know to do this. And to think I forgot.
  • Experiences are better than things. Although you don’t have something tangible to hold, the memories will last a lifetime. No fancy brass peacock side table can do that. (damn you, Anthropologie)
  • You can pay it forward in life with a smile or a hello. I am convinced that the world would be a better place if everyone would make an effort to be kind and open.
  • Everyone has something going on that is causing them pain. So it’s nice to pause and think about that before engaging in road rage or nasty yelp reviews.
  • Some people don’t really like Scrabble and it’s probably a good reason not to play since it stresses them out. (haha, love you Wyatt)
  • Please and thank you are not optional. No need to explain this one.
  • Yoga mats need showers too, but it is better to do this while you are taking a shower, not standing outside of it.
  • There should never be a shortage of hugs and kisses.  Give and you will receive.
  • Every day, and I mean every single day, start with a simple meditation. It will only take one minute, and it goes something like this: “Thank you for this day. Thank you for each breath I am given, and the offering of another beautiful day in this life.” Breathe it in, realize how precious this life is, and your day will automatically start out with rainbows.

Thank you for letting me share. 🙂

Love, love, love,

Kristin

p.s.  I forgot one observation: Album covers have improved over the years.  I caught this one on my yacht rock station and all I could think was someone had to say, “oh yeah, that’s the one. For sure.”

england and foley